Overview
Autistic people face significant health inequalities — the Oliver McGowan case (2018) led to mandatory autism and learning disability training for NHS staff. Knowing your rights helps you get the right care.
Key points to understand
- Autistic adults die on average 16 years earlier than non-autistic adults (Hirvikoski et al., 2016).
- Reasonable adjustments at GP, hospital and dentist are legal entitlements.
- Annual health checks are available for autistic adults on the GP register.
- A hospital passport summarises your needs for any clinical setting.
Practical strategies that help
- Ask to be added to the GP autism register.
- Request reasonable adjustments in writing (first/last appointment, longer slot, quiet room, written info).
- Use a hospital passport (NAS, Mencap and most trusts have templates).
- Take a supporter to important appointments.
Common challenges to be aware of
- Diagnostic overshadowing — physical symptoms blamed on autism — is common; insist on investigation.
- Make complaints in writing if access fails.
How Bright Steps can help
Bright Steps brings together autistic people, families, carers and professionals across the UK. You can use the Community to talk to others who get it, save articles and activities to your Library, and explore Resources built for everyday life. Our Routines and Reward Charts turn ideas from this article into things you can try today.
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References & further reading
✏️ This article will be expanded with rich, UK-specific content, case studies, video explainers and downloadable resources. If you'd like to contribute a story or suggest a correction, contact the Bright Steps editors via the Community page.