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Down's Syndrome
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Parents & carers

Benefits, Grants and Financial Support

Always check current rates and eligibility before publishing because benefits change.

6 min read

Always check current rates and eligibility before publishing because benefits change.

SupportWho/what it is forKey pointsTips for familiesSources
for childrenUnder 16s who need much more care/supervision or have mobility needs than a child of the same age may qualify.Care component can be awarded for extra day/night help; mobility has lower/higher rates with age rules.Keep a diary and explain real support, not best days.GOV.UK children;GOV.UK rates;Citizens Advice
care componentLowest £30.30, middle £76.70, highest £114.60 per week for 2026/27 rates listed by GOV.UK.Use examples of supervision, communication, therapies, eating, sleep, toileting, safety and behaviour support.Do not just write diagnosis; describe extra care compared with a child the same age.GOV.UK rates
mobility componentLower £30.30, higher £80.00 per week. Higher mobility can apply from age 3 and lower from age 5, if criteria are met.A child can physically walk and still have mobility needs if they need guidance/supervision outdoors or meet severe criteria.Explain risk, awareness, distress, refusal, danger, route following, stamina and supervision.GOV.UK rates;GOV.UK children
from age 16 supports daily living and mobility needs for people aged 16+ with long-term difficulties expected to last at least 12 months.Start preparing before transition from to .Focus on reliably, safely, repeatedly and in reasonable time.GOV.UK ;GOV.UK eligibility
Universal Credit disabled child additionUC may include a lower or higher disabled child amount. GOV.UK lists £164.79 lower and £514.71 higher monthly amounts.Tell UC as soon as / is awarded; ask about backdating if appropriate.Upload award letter/journal message.GOV.UK UC what you'll get
Carer's AllowanceFor carers providing at least 35 hours a week to someone getting qualifying benefits. 2026/27 GOV.UK rate is £86.45 a week.Check earnings rules and impact on other benefits first.Only one person can claim for the same cared-for person.GOV.UK Carer's Allowance;Carers UK
Carer's CreditNational Insurance credit for carers who cannot claim Carer's Allowance or have gaps.Useful where caring affects work/pension record.Check GOV.UK eligibility.GOV.UK Carer's Allowance
Blue BadgeMay help with parking where mobility, safety, hidden disability, route planning or higher mobility benefit criteria apply.Apply via GOV.UK or local council depending on country/local rules.Gather / letters and professional evidence.GOV.UK Blue Badge
Motability SchemeIf eligible through higher/enhanced mobility benefits, families may lease a car, wheelchair accessible vehicle, scooter or powered wheelchair.Check eligibility and affordability before using mobility benefit.Useful for hospital/school/community access.Motability
Family FundGrants and services for families raising disabled or seriously ill children/young people on a low income across the UK.Can help with items such as appliances, breaks, furniture, technology or sensory equipment depending on criteria.Apply online and keep evidence of need/income.Family Fund
Disabled Facilities GrantCouncil grant for home adaptations. GOV.UK says up to £30,000 in England, £36,000 in Wales, £25,000 in Northern Ireland; Scotland has different support routes.Children's applications are often assessed differently to adults; ask local council/.Examples: bathroom adaptation, ramps, wider doors, safer access.GOV.UK DFG;GOV.UK DFG amounts
Council Tax Disabled Band ReductionPossible reduction if the home has adaptations or extra space needed because of disability.Ask local council; evidence may include /medical letters.Do not assume you need to be on benefits.GOV.UK DFG
Direct Payments/Personal BudgetSocial care funding route that may allow families/adults to arrange agreed support directly.Requires social care assessment and support plan.Can fund short breaks/personal assistant support depending on assessed need.NICE NG213
Short breaks/respiteLocal authorities should have short breaks information for disabled children/families.Ask children with disabilities team for assessment and local offer.Carers can also request a carer's assessment.NICE NG213;Contact
Benefits calculatorUse a trusted calculator to check full household entitlement.Turn2us and entitledto are commonly used UK calculators.Re-check after / awards or household changes.Turn2us benefits calculator;Family Fund

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