Down's Syndrome
UK-focused practical hub for families, carers and professionals supporting a child or young person with Down's syndrome. Information and signposting — not medical or legal advice.
Parents & carers
Down's Syndrome Overview
Start here if you want a quick plain-English summary families can read.
Types, Genetics and Related Profiles
Explains the different types and important related profiles without reducing the person to a label.
Health Watch, Checks and When to Act
Use this as a prompt list for GP, paediatrician, school nurse, annual reviews and care plans.
Parent and Carer Pathway
Step-by-step route from pregnancy/newborn diagnosis through school and adult transition.
Education, School Support and EHCP
For SEN Support, EHCP requests, school meetings and annual reviews.
Speech, Language, Communication and Inclusion
Practical communication strategies for home, nursery, school, college and care settings.
Benefits, Grants and Financial Support
Always check current rates and eligibility before publishing because benefits change.
Trusted Charities, Websites and Helplines
A ready-made directory of useful websites for families and professionals.
Professional Roles and What to Ask For
Useful for families who do not know which professional does what.
Red Flags and When to Seek Help
This is safety signposting, not a diagnosis tool. Urgent symptoms need urgent medical help.
Template Wording for DLA, PIP, EHCP, School and Social Care
Families can adapt this wording to their own child's real needs and evidence.
Age and Stage Guides
Quick age-stage guide from pregnancy to adult life.
Down Syndrome Act 2022 and Advocacy Notes
Plain-English notes for using the Act/guidance in support conversations.
Glossary
Plain-English terms families may see in letters, reports and meetings.
Source URLs and Update Log
Plain-text URLs included inside the workbook for transparency and easy updating.