Skip to main content
Down's Syndrome
💛
Parents & carers

Education, School Support and EHCP

For SEN Support, EHCP requests, school meetings and annual reviews.

6 min read

For Support, requests, school meetings and annual reviews.

AreaWhat it meansSupport/Provision examplesParent directionSources
SupportSupport a school must consider when a child has special educational needs but no .Assess-plan-do-review cycles, clear targets, visual supports, strategies, support, differentiated tasks, sensory/motor support.Ask for written Support plan and review dates. ; needs assessment
requestAsk for an needs assessment when needs may require special educational provision beyond normal school resources.Include diagnosis, professional letters, school evidence, therapy needs, care/medical needs and parent views.Use template and keep proof of submission. needs assessment
Section BNeeds section. It should describe every education need clearly, including speech/language, cognition, physical, social, sensory and independence needs.Needs must link to provision in Section F.Challenge vague wording if needs are missing.
Section FEducational provision section. This should be specific, quantified and enforceable.Examples: direct time, programme, visual resources, small-group teaching, trained staff, personal care support.Avoid wording like 'access to', 'opportunities for', 'as required' unless very clear.
Speech and language supportMany pupils need targeted communication support across the whole day, not just therapy sessions.Total communication, signing, visuals, AAC, pre-teaching vocabulary, processing time, speech clarity work.Ask school how advice is embedded daily. how to help CYP;See and Learn
Learning profileLearners may have stronger visual learning and challenges with auditory memory, expressive language and abstract concepts.Use visual prompts, written key words, repetition, concrete resources and short steps.Do not lower expectations; adapt teaching.Down Syndrome Education International;DSUK Starting School
Reading and literacyMany children with Down syndrome can benefit from early reading/word recognition approaches to support language.Use high-interest words, matching, visual memory strengths and repeated practice.Ask school to use evidence-based DS-specific strategies.Down Syndrome Education International;See and Learn
NumeracyCounting, number language, memory and abstract concepts may need structured visual and hands-on support.Use concrete-pictorial-abstract methods, number lines, ten frames, real coins and clear vocabulary.Pre-teach language and reduce working-memory load.Down Syndrome UK
support support should promote learning, communication, safety and independence, not isolate the pupil from peers.Plan when adult support steps back, peer interaction, independent work and inclusion.Ask for training in Down syndrome and communication needs.DSUK Starting School
Medical care planA written plan for heart, feeding, medication, seizures, sleep-related fatigue, toileting, mobility, infections or emergency needs.Must be shared with staff and reviewed.School should know who does what and when. other health conditions;DSMIG medical surveillance
Reasonable adjustmentsSchools must consider adjustments so disabled pupils are not placed at a substantial disadvantage.Visual timetables, reduced language load, extra time, seating, movement breaks, accessible toilets, quieter lunch space, adapted PE.Record what works and what does not.
Attendance/Anxiety, bullying, fatigue, sleep problems, unmet communication needs or medical issues can affect attendance.Ask school to investigate causes and create a support plan rather than blame.Gather evidence and seek medical/ review if attendance drops.NICE NG213
Personal care/toiletingChildren may need discreet, dignified support with toileting, changing, menstruation and hygiene.Put support in writing and protect dignity/privacy.Ask for care plans and transition practice.NICE NG213
TransportSome children need school transport support due to mobility, safety, cognition, health or route-planning needs.Apply via local authority transport policy and provide evidence.Keep evidence of risk, distance, supervision and medical needs.
Annual reviewEHCPs must be reviewed regularly; use the meeting to update needs, outcomes and provision.Bring updated reports, parent evidence and examples of progress/barriers.Ask for amendments where needs/provision have changed.

More from Down's Syndrome

How we review this content