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Down's Syndrome
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Parents & carers

Glossary

Plain-English terms families may see in letters, reports and meetings.

6 min read

Plain-English terms families may see in letters, reports and meetings.

TermMeaning
AACAugmentative and Alternative Communication, such as communication books, symbols, devices and apps.
AudiologyService that checks hearing and helps with hearing support.
Disability Living Allowance for children under 16 who meet care/mobility criteria.
Down's syndrome / Down syndromeGenetic condition linked to extra chromosome 21 material. UK sources use both spellings.
DSMIGDown Syndrome Medical Interest Group UK, a key source for medical surveillance guidance.
Education, Health and Care Plan; legal document setting out needs and provision in England.
needs assessmentAssessment that may lead to an .
Expressive languageAbility to use words/signs/symbols to communicate thoughts and needs.
HypotoniaLow muscle tone, common in Down's syndrome.
MakatonA language programme using signs and symbols alongside speech.
Mosaic Down syndromeA type where only some cells have extra chromosome 21 material.
Personal Independence Payment for people aged 16+ with qualifying daily living/mobility needs.
PortageHome-based early education support for young children with .
/Speech and Language Therapy/Therapist.
SupportSchool support for special educational needs without an .
Special Educational Needs Coordinator in school/nursery.
TAM/TL-DSTransient Abnormal Myelopoiesis/Transient Leukaemia of Down Syndrome, a newborn blood condition needing medical follow-up.
Total communicationUsing speech, signs, symbols, gestures, objects, visuals and AAC together.
TranslocationA type of Down syndrome where extra chromosome 21 material is attached to another chromosome.
Visual timetableA visual sequence showing what is happening and what comes next.

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