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Down's Syndrome
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Parents & carers

Professional Roles and What to Ask For

Useful for families who do not know which professional does what.

6 min read

Useful for families who do not know which professional does what.

Professional/ServiceRoleWhat to ask forArea
First point for health concerns, referrals, prescriptions, annual health checks and care coordination.Ask for referrals if hearing, sleep, pain, reflux, thyroid, mental health or infection concerns appear.Health
PaediatricianCoordinates child health needs, surveillance, development and specialist referrals.Ask for a clear health plan and review schedule.Health
Health visitor/school nurseEarly years and school-age health, development and family support.Can support referrals, safeguarding, toileting, sleep and health plans.Health
CardiologistAssesses and manages heart conditions.Essential where congenital heart condition is suspected/confirmed.Health
Audiologist/ENTAssesses hearing, glue ear, ear infections and related impact on language.Ask for updated hearing evidence for // if needs affect daily life.Health
Ophthalmologist/optometristVision checks and eye conditions.Keep up-to-date glasses and reports.Health
Speech and language therapistCommunication, speech clarity, language, feeding/swallowing and AAC.Ask for quantified therapy and school carry-over advice.Health/Education
PhysiotherapistGross motor skills, walking, posture, strength, mobility and low tone.Can advise on exercises, mobility, orthotics and PE adjustments.Health/Education
Occupational therapistFine motor, sensory, self-care, seating, equipment and home/school adaptations.Useful for handwriting, toileting, dressing, feeding and access.Health/Education/Social Care
DietitianNutrition, feeding, weight, constipation/reflux and specialist diets.Ask if growth, eating or gut symptoms are concerns.Health
Educational psychologistAssessment of learning, cognition, adaptive functioning and school provision.Important evidence for and teaching strategies.Education
School lead for special educational needs support and coordination.Ask for written plans, review dates and provision mapping.Education
Portage worker/early years inclusionHome/early years developmental support for preschool children.Ask local authority about referral criteria.Education/Early Years
Children with disabilities social workerSocial care assessment, short breaks, direct payments, safeguarding and family support.Ask for child in need/social care assessment if caring needs are significant.Social Care
Learning disability nurse/teamAdult support with health access, communication, reasonable adjustments and complex needs.Useful during transition to adult services.Health/Social Care
Benefits adviser/welfare rightsHelps with , , UC, mandatory reconsideration and appeals.DSA, Contact, Citizens Advice and local welfare rights may help.Benefits

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