Skip to main content
Down's Syndrome
💛
Parents & carers

Red Flags and When to Seek Help

This is safety signposting, not a diagnosis tool. Urgent symptoms need urgent medical help.

6 min read

This is safety signposting, not a diagnosis tool. Urgent symptoms need urgent medical help.

ConcernExamplesDirectionArea
Breathing or colour changeBlue lips, severe breathlessness, pauses in breathing, struggling to breathe.Seek urgent medical help / 999 if severe.Health
Poor feeding/dehydrationNot feeding, very sleepy, fewer wet nappies, choking/coughing on feeds.Contact midwife/health visitor//111 urgently depending severity.Health
Sudden behaviour changeNew aggression, withdrawal, refusal, sleep change, crying, self-injury or loss of interest.Check pain, constipation, reflux, ears, teeth, vision, hearing, sleep, bullying and anxiety.Health/Education
Loss of skillsRegression in speech, mobility, toileting, learning or independence.Ask /paediatrician for urgent review.Health
Neck/spine signsNeck pain, weakness, change in walking, new clumsiness, bladder/bowel changes.Seek prompt medical advice; urgent if severe or sudden.Health
Sleep apnoea signsLoud snoring, breathing pauses, restless sleep, sweating, morning headaches, daytime sleepiness.Ask /paediatrician/ENT about sleep assessment.Health
Hearing/vision changeMissing instructions, bumping into things, squinting, sitting close, sudden inattention.Request audiology/eye check.Health/Education
Constipation/reflux painPain, bloating, vomiting, food refusal, distress after meals, soiling, sleep disturbance.Ask /paediatrician for assessment.Health
Bruising/pallor/infectionsUnusual bruises, tiny red/purple spots, paleness, recurrent infections, swollen tummy, extreme tiredness.Seek medical review urgently.Health
School refusal or distressCrying before school, shutdown after school, avoidance, aggression at home after masking.Ask school to review support, sensory, bullying, communication and workload.Education
SafeguardingAny concern of abuse, neglect, exploitation, online risk or unsafe care.Follow safeguarding procedures and seek immediate help if at risk.Safeguarding

More from Down's Syndrome

How we review this content