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Down's Syndrome
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Parents & carers

Template Wording for DLA, PIP, EHCP, School and Social Care

Families can adapt this wording to their own child's real needs and evidence.

6 min read

Families can adapt this wording to their own child's real needs and evidence.

Use caseExample wordingHow to use itArea
care - communicationMy child needs much more support than other children their age to understand instructions, communicate needs, make choices and stay safe. They often need visual prompts, repeated explanation, signing/pictures and adult interpretation.Use examples: meals, toileting, school, shops, bedtime, pain/illness, road safety.Benefits
care - supervisionThey require frequent supervision because they may not recognise danger, may follow others, may become overwhelmed, or may not be able to explain what is wrong.Avoid saying 'fine most of the time' without explaining hidden support.Benefits
night needsAt night they need support with settling, waking, toileting, breathing/sleep concerns, reassurance, safety checks or returning to bed.Keep a two-week night diary.Benefits
mobilityAlthough my child can walk, they cannot safely manage outdoor journeys like a child of the same age because they need adult guidance, reassurance, supervision and help with route changes, traffic, fatigue and distress.Walking ability alone is not the whole test.Benefits
daily livingThey need prompting, supervision or assistance to complete daily living tasks reliably, safely, repeatedly and within a reasonable time.Use real examples and explain consequences without help.Benefits
needs wordingThe pupil has significant speech, language and communication needs linked to Down's syndrome, including delayed expressive language, reduced speech clarity, working-memory difficulties and need for visual support.Put needs in Section B and provision in Section F.Education
provision wordingThe pupil requires a total communication approach across the school day, including visual timetable, now/next board, key vocabulary visuals, processing time, staff trained in their communication system and daily opportunities to practise functional communication.Make it specific and measurable.Education
School adjustment wordingInstructions should be given in short steps with visual support and time to process. Staff should check understanding without putting the pupil on the spot publicly.Practical and respectful.Education
support wordingAdult support should be planned to enable access, safety, communication and independence while also facilitating peer interaction and avoiding unnecessary isolation.Avoid blanket with no purpose.Education
Medical care plan wordingSchool should maintain a written health care plan covering relevant cardiac/respiratory/feeding/hearing/vision/sleep/toileting or emergency needs, with named staff responsibilities and review dates.Add professional letters.Education/Health
Social care requestI am requesting an assessment because my child's disability creates significant care, supervision, safety, personal care and family support needs that are beyond ordinary parenting tasks.Give evidence of day/night care and impact on siblings/parents.Social Care
Complaint/chase wordingPlease confirm in writing what action will be taken, who is responsible, the timescale, and how this will be reviewed.Keep email records and dates.General

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