A ready-made directory of useful websites for families and professionals.
| Organisation | What they do | Useful support | Contact | Website | Coverage |
|---|---|---|---|---|---|
| Down's Syndrome Association | National charity supporting people with Down's syndrome, parents, carers and professionals across life's journey. | Helpline, information, benefits advice, training, resources, support from birth to older age. | 0333 121 2300 | https://www.downs-syndrome.org.uk/ | National |
| Down Syndrome UK | Parent-led charity providing support, training and resources for parents and professionals. | Pregnancy/new baby support, education resources, primary school training, community groups. | https://downsyndromeuk.co.uk/ | National | |
| Positive About Down Syndrome | Part of Down Syndrome UK focused on contemporary, positive information for expectant and new parents. | Maternity support, counselling, parent resources, training for professionals. | https://positiveaboutdownsyndrome.co.uk/ | National | |
| Down Syndrome Education International | Education charity specialising in research-informed resources for children with Down syndrome. | See and Learn, language, reading, numeracy, development resources. | https://www.down-syndrome.org/en-gb | International/UK | |
| See and Learn | Step-by-step resources for early speech, language, reading and numeracy. | Practical activities for families and early years/school staff. | https://www.seeandlearn.org/en-gb | International/UK | |
| DSMIG UK | Down Syndrome Medical Interest Group, sharing medical surveillance guidance and health information. | Health checks, growth charts, thyroid, hearing, vision, immunisation, haematology information. | 0333 1212 300 | https://www.dsmig.org.uk/ | UK professional/parent resource |
| Mencap | UK learning disability charity supporting people with learning disabilities and families. | Helpline, easy read information, rights, employment, campaigns and services. | 0808 808 1111 | https://www.mencap.org.uk/ | National |
| Contact | UK charity for families with disabled children aged 0-25. | Free helpline, benefits/ help, parent support, listening ear and condition information. | 0808 808 3555 | https://contact.org.uk/ | National |
| Scope | Disability equality charity with advice and support. | Advice on benefits, diagnosis pathways, disabled children, social care and daily life. | https://www.scope.org.uk/ | National | |
| Independent Provider of Special Education Advice. | law, needs assessments, appeals, template letters and advice line. | https://www.ipsea.org.uk/ | England | ||
| Family Fund | Grants for families raising disabled or seriously ill children on low incomes. | Household items, technology, breaks and support services depending on eligibility. | https://www.familyfund.org.uk/ | UK | |
| Cerebra | Charity supporting children with brain conditions and families. | Sleep advice, legal rights, guides, problem-solving toolkit, grants/resource info. | https://cerebra.org.uk/ | UK | |
| Council for Disabled Children | Umbrella body supporting policy and practice for disabled children and young people. | resources, legal/practice information, health/social care/education guidance. | https://councilfordisabledchildren.org.uk/ | UK/England | |
| Learning Disability England | Membership organisation for people with learning disabilities, families and organisations. | Rights, inclusion, good lives, policy and community resources. | https://www.learningdisabilityengland.org.uk/ | England | |
| Dimensions | Learning disability and autism support provider with resources. | Supported living, behaviour support resources, family guidance. | https://www.dimensions-uk.org/ | UK | |
| Local Down syndrome support groups | Local groups vary by region and may offer play sessions, family support, training and peer networks. | Search local authority local offer, DSA local groups and Facebook community groups. | https://www.downs-syndrome.org.uk/ | Local |