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Parents & carers

After diagnosis support

First steps after a diagnosis — emotional, educational and practical.

6 min read

What happens after a diagnosis

A diagnosis is the start of a journey, not the end. You may feel relief, grief, validation, confusion, or all of those at once. All of this is normal.

In the first few weeks

  • Read the written report carefully. Ask the team to explain anything unclear.
  • Share the diagnosis with school (with your child's agreement, if age-appropriate) and discuss what support should change.
  • Tell key family members in your own time, and only what you are comfortable sharing.
  • Give yourself space. There is no "right" emotional response.

Practical next steps

  • Update the school's record and ask for a meeting with the .
  • Check whether your child may be eligible for for children based on their care or mobility needs.
  • Consider whether Carer's Allowance may apply if you provide significant care.
  • Ask the local authority's local offer about post-diagnostic support, parent courses and short breaks.

Supporting your child

  • Use age-appropriate language to explain the diagnosis if and when they are ready.
  • Focus on strengths and self-understanding, not "fixing".
  • Connect with other autistic young people or trusted role models if possible.

Key message

Your child has not changed — but you now have a clearer language for understanding and advocating for them.

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